TY - JOUR
T1 - Strength in numbers
T2 - An international consensus conference to develop a novel approach to care delivery for young adults with type 1 diabetes, the D1 now study
AU - D1 Now Type 1 Diabetes Young Adult Study Group
AU - O’hara, M. C.
AU - Hynes, L.
AU - O’donnell, M.
AU - Keighron, C.
AU - Allen, G.
AU - Caulfield, A.
AU - Duffy, C.
AU - Long, M.
AU - Mallon, M.
AU - Mullins, M.
AU - Tonra, G.
AU - Byrne, M.
AU - Dinneen, S. F.
N1 - Publisher Copyright:
© The Author(s). 2017.
PY - 2017/12/4
Y1 - 2017/12/4
N2 - Background A 3-day international consensus meeting was hosted by the D1 Now study team in Galway on June 22–24, 2016 called “Strength In Numbers: Teaming up to improvethehealthofyoungadultswithtype1diabetes”. The aim of the meeting was to bring together young adults with type 1 diabetes, healthcare providers, policy makers and researchers to reach a consensus on strategies to improve engagement, self-management and ultimately outcomes for young adults living with type 1 diabetes. Methods This diverse stakeholder group participated in the meeting to reach consensus on (i) a core outcome set (COS) to be used in future intervention studies involving young adults with type 1 diabetes, (ii) new strategies for delivering health services to young adults and (iii) potential digital health solutions that could be incorporated into a future intervention. Results A COS of 8 outcomes and 3 key intervention components that aim to improve engagement between young adults with type 1 diabetes and service providers were identified. A digital health solution that could potentially compliment the intervention components was proposed. Conclusion The outputs from the 3-day consensus conference, that held patient and public involvement at its core, will help the research team further develop and test the D1 Now intervention for young adults with type 1 diabetes in a pilot and feasibility study and ultimately in a definitive trial. The conference represents a good example of knowledge exchange among different stakeholders for health research and service improvement.
AB - Background A 3-day international consensus meeting was hosted by the D1 Now study team in Galway on June 22–24, 2016 called “Strength In Numbers: Teaming up to improvethehealthofyoungadultswithtype1diabetes”. The aim of the meeting was to bring together young adults with type 1 diabetes, healthcare providers, policy makers and researchers to reach a consensus on strategies to improve engagement, self-management and ultimately outcomes for young adults living with type 1 diabetes. Methods This diverse stakeholder group participated in the meeting to reach consensus on (i) a core outcome set (COS) to be used in future intervention studies involving young adults with type 1 diabetes, (ii) new strategies for delivering health services to young adults and (iii) potential digital health solutions that could be incorporated into a future intervention. Results A COS of 8 outcomes and 3 key intervention components that aim to improve engagement between young adults with type 1 diabetes and service providers were identified. A digital health solution that could potentially compliment the intervention components was proposed. Conclusion The outputs from the 3-day consensus conference, that held patient and public involvement at its core, will help the research team further develop and test the D1 Now intervention for young adults with type 1 diabetes in a pilot and feasibility study and ultimately in a definitive trial. The conference represents a good example of knowledge exchange among different stakeholders for health research and service improvement.
UR - https://www.scopus.com/pages/publications/85047820828
U2 - 10.1186/s40900-017-0076-9
DO - 10.1186/s40900-017-0076-9
M3 - Article
SN - 2056-7529
VL - 3
JO - Research Involvement and Engagement
JF - Research Involvement and Engagement
IS - 1
M1 - 25
ER -
